When Definitions Matter.

In my first post, I mentioned that I have a chronic, debilitating progressive neurological disease with the acronym MERRF. While I see 2 very smart and trustworthy specialists for the condition their opinion of how I'm doing versus mine are stark.  The problem for me is that they get a snapshot of me ever 6 months or so and I have an inner conversation multiple times a day. To hear the latest news "you're doing great" is not how I feel at all.

My posts are generally not about me, this time however I'd like your input. Please email me with the subject WHEN DEFINITION MATTERS AT DBARSOOK@GMAIL.COM.  

 I'd Like to Know What You're Going Through.

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